“Choose to Remember”

Erma’s left to go about her day after coffee and conversation with her best friend. She leaves Sylvia to contemplate the day and so much more.

As we finally come into summer weather, I think often of my family, extended and adopted, as well as my many friends- both near and far- who will be celebrating big milestones with and for their loved ones and the country with great fanfare and zest. My heart becomes instantly full. And then, just as quickly, I grow agitated and even a bit sad and disgusted.

I thought about this long and hard before I decided to share these thoughts, and then I remembered, that each of you has the option to either read and reflect or skim and skedaddle. So, I’m sharing because -to me- this is the stuff that we are meant to share, so that we can help each other through the rough spots. And one day each of us has or will have a couple, several, or many very rough spots. That is inevitable.

When my mother became ill in 2007 and she and Dad came to live with me and my family in California, everything changed. Family dynamics. Relationships. Life in general. My mom fought her battle miles away from many, but still she felt connected to the world. She was still a citizen. Still a mother. A nana. A friend. A sister. An aunt. She received calls, cards, visits, emails, etc. That ability to communicate is so often, too often, taken for granted these days because perhaps it requires so little forethought to text or communicate via technology. (Communication though does require thought– for now anyway.)

When one is fighting for life, it is an internal war of massive proportions. Your loved ones try to empathize and offer support and help to fight the daily skirmishes. The war though, the one that will inevitably be lost, which is really not a defeat but a matter-of-fact in life, is a solitary one. Death. Mom fought with all her might. People admired her strength, her guts, her spirit, and her grace. And indeed, my mom was strong, gutsy, spirited, and graceful. My mother was also a fairly private person who had a very public illness. An illness which everyone- EVERYONE- is touched by and despises.

Here’s where my thoughts, sadness, and disgust come into play. Woe is not I. Woe is WE. We fail in so many ways.

My father as you all know battles another dreaded disease- Alzheimer’s. He’s in the late stages now. He, unlike my mother, was a very public person, yet he has been saddled with a very closeted disease. It is we as a society comprised of supposedly loving families and friends who fail. It’s not that people don’t care. It’s not that awareness isn’t growing. I think it’s this simple and this heart- wrenching. The man that people knew is closeted. While he is locked away in his own mind, it is the key that everyone throws away that makes me sick to my stomach. He can no longer walk the streets. He can no longer go to the coffee shop and shoot the breeze with his buddies or those about town. He can no longer enjoy a meal in his family’s presence. Whereas my mother had the choice as to whether or not she would continue to do those things, my father does not. And therein is where my sadness and disgust emerge.

Alzheimer’s does steal from the person who is afflicted, but my sadness isn’t for my father or for myself. I am saddened by and for the many who don’t see him, or their own friends and loved ones with the illness. Dad is not dead. “Life is for the living” I hear time and again. Guess what? The smiling man who looks fabulous in yellow is very much alive. His pleasures are few, but if you could see how he still enjoys a jelly donut, holding a hand, or someone who smiles at him in passing, you’d know he’s very much here. He’s not the same man at a glance, but he’s the same man. And for the record, I am not a wonderful daughter. I’m just a daughter, a human being, who is doing the best she can. I’m the girl who still sees the light and laughter in the man who taught her to step outside of herself and give back to the community and world at large.

So, during this ensuing week of remembrance, post Memorial Day, remember that the sorrow you feel and condolences you offer to the caregiver while appreciated are not warranted and do not make the caregiver necessarily feel better. I am caring for someone who is still alive. Very much alive. It is a slow process of dying, but the end is not here. In my mind and in the eyes of a power greater than any of us, my father and others who live with this disease are still human, still feel, and still contribute. They are teaching us to value life. I and others who have Alzheimer’s in their faces each day would much rather you see, really see, that our person- our father, husband, brother, uncle, and friend is still there. Is still here. Send a card. Make a visit. It may be hard for you, but trust me, the small battle of getting through the day would be so much easier for the Alzheimer’s patient if he or she was not totally forgotten and closeted. Being locked in his or her own mind is bad enough. And I guarantee that if what you are looking for is a moment to stop and appreciate what you have and to get outside of yourself, Alzheimer’s is the wake-up call.

Remember. Remember. Right now you have that extreme luxury.

Wishing all of us peace, joy, and the power of remembering what it means to live and love fully and with intention and purpose.

So many things come to light when Sylvia sits out in the sunshine on the cove.

Keep It Moving

It’s 10 a.m. Sylvia is contemplating the day, doing laundry, writing, and pouring another cup -multi-tasking as most women do- when Erma phones.

Erma: Good morning, Sylvia. What are you up to today?

Sylvia: Nothing exciting, Erma, but the day is young, so there’s plenty of hope. I am wondering though if life will always be like this. Full. Of nothing and everything.

Erma: Here’s how I see it, Sylvia. As long as it’s full of anything, you are moving. Moving is key. Motion is living. Of course, each decade brings with it a new definition of motion, but let’s not get into that. Semantics aside, at my age- any age, really- moving simply means you aren’t dead, so that’s a real plus! In that alone, there’s hope.

Sylvia: I’m grabbing another cup, my friend, so prepare to give me your overview of moving through the decades.

Erma: Here goes

At twenty, we live with anticipation and energy and the goals (for most of us) are to make tomorrow come faster, to have fun today, and to remove ourselves from what we looked like yesterday. We are chameleons in fact. Changing and moving at the speed of light but too often without direction.

At thirty, we live with hope that tomorrow will be easier; today we will get ahead a bit or at least stay afloat, and we hold out hope that our mistakes from yesterday will not be repeated. Alas, we repeat many of them, but that’s okay because we are charting our own course- or at least we think so.

At forty, we live with anxiety and fear that tomorrow we will find that we do not have enough of anything- time, money, love, or patience. Today we went through the motions and have little recall of what actually transpired. We long for the lack of both the accountability and the responsibility we had in our youth. Yesterday was not so bad.

At fifty, we live with intent and purpose. Tomorrow is getting close. Too close. It promises nothing, so we must accomplish all that has to be done without delay. And somehow, because we have either become more efficient in or less critical of how we perform our tasks, we will also manage to carve out a little bit of time for ourselves, even if it’s only a second to reflect, breathe, write, or have a bit of conscious “me” time. Yesterday, though we intended to do just that, time slipped away and we cannot get it back. Today though, today, for sure, we convince ourselves.

And here’s where Sylvia and Erma stop to welcome their many wise and witty friends of a certain maturity to add their two cents to the decades, which undoubtedly has greater value than anything they could pretend to know or even imagine.

This we know as it has been said time and again: tomorrow is not guaranteed and yesterday is done. Here and now is all we have! Have an amazing day or at the very least a day lived as best you can with intention, purpose, and some self-care.

We are putting another pot on because we have so much more to figure out and so much more life to live.

Cheers with coffee. Gotta keep moving.

Watch “THE BLOG GOES LIVE ” on YouTube

Erma has had a voice; Sylvia’s finding hers. Together, these two are hell bent on helping others find theirs. Sharing “aha” moments. Snapping each other out of funks. Whatever it takes to get one another over the next hurdle, through the next day, and onto the next best part of life.

Everyone needs someone, so grab your mug (or a glass) and pull up a chair for a look and a listen.

The week is off to an interesting start!

Sylvia Knows Heaven on Earth

I don’t believe in heaven. Not as a destination anyway. Well, let me further amend that to say that I don’t believe that “good” people -those who lived life both honestly and vulnerably, with purpose and love in their hearts for themselves and the world around them, those who atoned for their “sins” (you know, those so-called egregious lapses in judgment for which we seek forgiveness and absolution throughout life, not hurriedly as we stand at death’s door)- I don’t believe that they simply, miraculously, and invisibly rise to the sky, “up to heaven” upon death, and gain actual wings. I’m not deluded or crazy after all, though I’m certain there are many who would say differently.

When I look to the sky, whether it is just to the level of the horizon as I watch the fiery orange sun come up to touch the still-sleepy blue sky or straight up into the depths of the black night canvas that on some nights appears riddled with stardust and on others is so dark and vacant that no strangers have even dared to stop at the countless, lightless inns above, I picture heaven. It’s not a place at all. It’s a feeling. For me.  It’s the promise, the hope,  and the possibility that a new day brings. It’s the unconditional love between a mother and a child, between a daughter and a father. The seamless and steadfast love between friends who are also soulmates.

I’ll find heaven today. It’ll be in my child’s laugh whether I hear it over the phone or recall its hearty playfulness when I read a text from him. And most assuredly, I’ll see heaven in my father’s smiling eyes today. I’ll find her right here in all that I do today and in everything and in everyone who loved her and who loves and supports me. Seven years without her – some might say “hell on earth” and oh, I’ve said that quite often!   Today, I’m going to tell myself that I’ve been blessed to know, feel, and experience heaven on earth.  I had a mother who shared and who continues to share life’s bounty and beauty with me. Now and evermore. 

“A mother’s love is a slice of heaven.” (~k. morgan)

(Photo credit: Florence McGinn)