Tag: caregiver

Simple Abundance

Say these three words aloud: apple, table, penny. Now, remember them. Simple task. Meaningful? Meaningless? Well regardless, we take for granted that we will always be able to perform the seemingly easy; but when all is said and done, those uncomplicated words and ordinary, mundane acts are nowhere near as impactful as watching him react to music of yesteryear or to the retelling of one of the countless stories he shared with me, stories that I am now charged with and honored to share with my loved ones and others on similar journeys. For me and for him, remembering that he was a member of the state championship relay team at Teachers College and being able to play back and recount that race and those feelings of glory were so much more important than the three plain and undecorated words that he could not remember ten seconds after they were uttered. That story of the past brought laughter and smiles to a room full of medical professionals who entered it both seriously and mission-oriented yet who left perkier and even more committed than they ever imagined they could be.

So, when we are feeling sorry for ourselves— admittedly, I do this more than anyone should or has the right to— let’s stop and get a grip. Hold on to the big, bubbly moments and memories from which we draw the strength to start all over again. That is our mission really, isn’t it?

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“…We can make the best or the worst of it. I hope you make the best of it. And I hope you see things that startle you. I hope you feel things you never felt before. I hope you meet people with a different point of view. I hope you live a life you’re proud of. If you find that you’re not, I hope you have the strength to start all over again.”
(~Benjamin Button, The Curious Case of Benjamin Button)

Do you see it? Hope is rising and ablaze early on a Monday morning.

Extra Weight

Sylvia, feeling restless and a bit cantankerous this afternoon, closes the laptop and begins thinking out loud:
Strength is a strange concept.
“Be strong.”
“You are stronger than you think.”
“Keep fighting the good fight.”
Tell me again how strong I am and how strong you think I have been and I might just punch you in the face. I know I am strong, damn it. And I know deep in my soul that I can survive anything—ANYTHING. Well, anything other than my own death, of course. This though, navigating these last ten months of life after loss during a pandemic no less, has tried, tested, and depleted me in ways I never could have imagined. I have tapped into reserves I never knew I had. Most days my belief in myself and my determination to thrive and find the ever-elusive (and illusive) happiness wins. It beckons an inner strength which comes disguised as stubbornness and fear of failure. Strength, or maybe it is willpower, comes cloaked in a thousand thoughts of vulnerability and self-assessment — oh yes, and a smile.

“Just because a person smiles all the time doesn’t mean their life is perfect. The smile is a sign of hope.”
~Anonymous
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All & Everything

Last night she closed her eyes to the sound of teeming rain and claps of thunder. She awoke to a deafening silence amidst a gray background. So that was it. Another day ended and another in the works.

“See, Sylvia, it all keeps moving along,” Erma reassures her friend.

“Indeed. I never said the loss was all or nothing. It’s been all and everything,” professes Sylvia.

When you experience loss, people say you’ll move through the 5 stages of grief….
Denial, Anger, Bargaining, Depression, Acceptance
…..What they don’t tell you is that you’ll cycle through them all every day.
~Ranata Suzuki

Lost & Found

Erma: It’s been a decade, right? Since your mom passed?

Sylvia: Yes, ten years in the blink of an eye. She must have been counting the days.

Erma: Yes, she undoubtedly wanted him home with her. They had been apart for too long. They were ready to be reunited and to live the eternity they had promised each other.

Sylvia: I wasn’t ready though. I’m still not. I don’t know how to navigate the rest of the journey. I’ve gone from devastated to lost.

Erma: Time. The only answer. It won’t heal but it will carry you. It will give you the life jacket you need from time to time to endure the waves that will pummel you at the most inconvenient and unexpected moments. 

Sylvia: I don’t need a life jacket. I’m not drowning. I told you I feel lost. I’m numb, shivering, in a blinding snowstorm, and I have no idea of what is ahead.

Erma: None of us knows, Syl. That’s where the notion of faith enters. And you are so far from lost– lost suggests that there is something to be found. There is nothing to be found and everything to be felt.

Sylvia: Oh, okay, then I’m right on track.

It’s been a month of Sundays since he passed, figuratively of course. Much longer in reality, and certainly it feels even more like an eternity. I’m not paralyzed or empty or broken. I’m numb. 

Every morning I awake hoping that I’ll complete the journey- the journey for which none of us is ever fully prepared- the journey off and away from the path of grief and sadness. Most people describe grief and its effect as wave-like; it ebbs and flows. It washes over you. It brings you under and makes it hard to catch your breath; and as soon as you stand and catch your breath, another wave knocks you down. It’s not a wave, not a ripple or a tsunami. It is more like the breathlessness you experience on a sub-zero day in the middle of January up north. This grief, this numbness, is totally different than any other I’ve ever felt. I can’t fully compare it to anything, not yet, because I know I haven’t lived through it completely. I doubt I ever will. Although if I had to liken this trek and its encumbrances to a relatable situation, I would imagine how one feels at a “Lost & Found” bin or depot. Hopeful yet aware of impending disappointment. Each morning I wake up headed to the lost and found. 

The phone rang last night. A message was left. “Your belongings have turned up. We are holding them for you at the ‘Lost & Found‘ window. Come at your earliest convenience.”

So, I awake with a controlled eagerness to pick up what has been left. After all, it is mine. It has been left for me to retrieve. I shower, get dressed, and off I go. On my way to the “Lost & Found” today. Every day for a month of Sundays. 

The journey has not taken me away or off the path. I have yet to retrieve what I believed belonged to me. I have yet to find wholeness. Perhaps I never will. Perhaps it is never to be found. But for now, I’ll keep listening to the message each night on the machine. I will keep getting up to see if the depot actually has what belongs to me. What needs to be reclaimed. I will live with the numbness- not in wave-like motion but in a traipse, much like the plodding of wearing full winter armor in heavy, wet snow on a frigid winter’s day.  And eventually – I hope anyway- faith will melt the snow away from the path.

I hope I will recognize what it is I lost. If not, I hope I find the strength to delete the message and move forward.  

Perspective

Don’t mistake her absence for darkness. In fact, it may be just what she needed to make her light shine brighter. A reminder to many but mostly to herself of her presence.
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“Of course I’ll hurt you. Of course you’ll hurt me. Of course we will hurt each other. But this is the very condition of existence. To become spring, means accepting the risk of winter. To become presence, means accepting the risk of absence.”
~Antoine de Saint-Exupéry

What Legacy Looks Like

Sylvia: Hey there, lady. Usually I’m the one missing calls and scurrying about. What have you been up to?

Erma: A little of this and a little of that. Nothing too distinctive.

Sylvia: Oh, but the sum and total of it all is what? Huge? Voluminous? Overwhelming?

Erma: Not huge, but substantive.

Sylvia and Erma are huge believers in quality over quantity. So, although they love and eagerly anticipate their morning conversations over coffee, they are aware that life often gets in the way. They have come to appreciate all of the little things in their relationship and in other important bonds between family and friends in their lives.

Little things. Gentle gestures. They share them. They look for them. They treasure them.

What small act today will you witness or be a part of that will impact you or another in a wondrous and everlasting way?

“And for a moment she pauses. She thinks back and smiles broadly. The seconds of joy and tenderness that her father shared with her son had the most impact. She sees it every time they see one another now- it’s always in their eyes.”

Hope on Her Birthday

Sylvia: Happy birthday, my dear! Older and wiser!

Erma: I don’t know about wiser, but I’m hopeful!

I don’t know what time she was born. I guess I could dig out her birth certificate and find out easily enough. To me, my mother was born the day I came into the world. Obviously, she had a life “b.k.”(before Kay), but I didn’t know her then. All I know of that woman who became my mother, both the little girl who wore braids and gingham and the young, blond-haired teen who played the drums before it was cool for a girl to play the drums, has been conveyed to me through others’ recollections, her own accounts as she would share an anecdote from her past with the slightly veiled purpose of teaching a lesson, and the photos that I have. And what connects all of the snapshots, real and those that I’ve taken in my mind’s eye which remain guarded like priceless treasure, is her eyes. It is said that the eyes are the windows to the soul; thus, it follows and must be that my mother, b.k. and always, was and remains one of the most beautiful, trusting, and trusted souls God could have offered this world.

Most of us, not all, love our mothers and have been loved by our mothers. I’ve been accused of worshipping mine. (In fact, my mother often reminded me, especially as she neared her last days, that she was indeed human, flawed like the rest of us, so she too should be allowed to make mistakes.) She would often say that the one bad rap that mothers had to endure was that they were held to a higher standard than everyone else on the planet! Now that I’m a mother, I admittedly understand this so much better. I digress though. I did worship my mother, something she never demanded or expected, but it happened nonetheless. How did it happen? Ah, that’s the question. The trusting and trusted eyes!

My mother had xray vision, vision that led her to know exactly what another human needed. To many and certainly to her family, this special sense- some call it a sixth sense while others deem it intuition- was who she was and how she lived her life at the very core. And while she may have regretted not doing all the things she had hoped to do before she died, I do believe she lived a purposeful life and her legacy is an honorable one. Her legacy? Her gift? She left it to everyone who had the honor and pleasure of looking into her eyes. My mother made those who crossed her path feel important, no matter their lot in life. She gave others hope. She found and saw something redeeming in everyone. She wasn’t oblivious to the harshness or evils of the world. She wasn’t naïve. She wasn’t optimistic. Mom was hopeful. I do believe there is a big difference between optimism and hope, and I think her trusting and trusted eyes became reflective of that difference.

I’m babbling a bit because as we all know the totality of a life cannot be put adequately into words. Indeed, my mother’s life cannot. Her legacy can though. Hope. She believed in me. She believed in her grandson. And if you had the good fortune of meeting her, befriending her, working for or with her, she believed in you. That belief – those trusting and trusted eyes- keep me hopeful. I don’t believe that life is perfect and I’m far from thinking everything will turn out well in the end. However, I am hopeful.

On her birthday, I’m going to trust her and her legacy. I’ll go to celebrate her life with my dad today, and in that gift alone, I’m offered hope.

Thanks, Mom. And I’ve come to realize that you never wanted to be worshipped; you wanted to be loved. You were. You are. You always will be.

Feeling Whole

Erma has been overwhelmed and more than anything else desires time to herself- time to inhale, exhale, and repeat. Sylvia craves space of her own- both mental and physical room. Time and space provide each of them the framework within which they can refuel and remain whole.

Take an hour. Take a day. Take a week. Walk outside. Sit in a café. Treat yourself to a spa day- even if it’s makeshift in the privacy of your own home. Whatever you need to make yourself feel whole, discover what that is and do it. Now!

You cannot be whole without the time and space to feel all that you are feeling!

“Each day holds a surprise. But only if we expect it can we see, hear, or feel it when it comes to us. Let’s not be afraid to receive each day’s surprise, whether it comes to us as sorrow or as joy, it will open a new place in our hearts, a place where we can welcome new friends and celebrate more fully our shared humanity.” ~Henri Nouwen

Just Enough Sugar

Long-distance relationships of all kinds are bittersweet. There is a heaviness in the heart with each hello because Sylvia knows that a “see you soon” or “until next time” is inevitable. She is always riding waves of emotion, especially as she hangs up the phone after an amusingly long call about nothing and everything with her bff; exchanges the last late morning text with her sister before they each go about their day; and kisses her dear dad’s cheek after their much-too-short visit. Today, she focuses on the sweet. The only thing bitter will be the convenience store cup of coffee she should not have bought while she was out doing early morning errands.

Always choose sweet!

“Friendship is always a sweet responsibility, never an opportunity.” ~Khalil Gibran

Mapping Her Story

After weeks, months, and years of caring for others near and far, Sylvia feels more ragged and worn than ever. Luckily and almost intuitively, Erma senses her friend’s need for an ego-boosting, confidence-inspiring, pep talk. So, on this Sunday evening over old-fashioneds because Erma finds the libation tried and true, she shares with Sylvia the secret to embracing the ever-changing topography of the female body and face.

Erma: You see these lines across my face, Syl?

Sylvia: I only see a beautiful, mature woman who has navigated life with grace and aplomb.

Erma: Okay, but seriously, look at me. I’m going to tell you now the key to aging gracefully because you need to be less critical of yourself.

Sylvia: Oh good because I have new wrinkles and lines every single day. I’m thoroughly intrigued and hanging on your every word now.

Erma: Hold the mirror. Look at those creases, that pucker, and even that furrow. Look closely and deeply.

Sylvia: As deeply as that “11” between my eyes?

Erma: Deeper. Now, close your eyes. Can’t you just see your story? Those lines tell your story. You’ve lived. You’re surviving, and you have more story to write.

Sylvia: How do you know, Erma?

Erma: You have some smooth skin left. It’s not over until you’re wearing a complete map!

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