“Choose to Remember”

Erma’s left to go about her day after coffee and conversation with her best friend. She leaves Sylvia to contemplate the day and so much more.

As we finally come into summer weather, I think often of my family, extended and adopted, as well as my many friends- both near and far- who will be celebrating big milestones with and for their loved ones and the country with great fanfare and zest. My heart becomes instantly full. And then, just as quickly, I grow agitated and even a bit sad and disgusted.

I thought about this long and hard before I decided to share these thoughts, and then I remembered, that each of you has the option to either read and reflect or skim and skedaddle. So, I’m sharing because -to me- this is the stuff that we are meant to share, so that we can help each other through the rough spots. And one day each of us has or will have a couple, several, or many very rough spots. That is inevitable.

When my mother became ill in 2007 and she and Dad came to live with me and my family in California, everything changed. Family dynamics. Relationships. Life in general. My mom fought her battle miles away from many, but still she felt connected to the world. She was still a citizen. Still a mother. A nana. A friend. A sister. An aunt. She received calls, cards, visits, emails, etc. That ability to communicate is so often, too often, taken for granted these days because perhaps it requires so little forethought to text or communicate via technology. (Communication though does require thought– for now anyway.)

When one is fighting for life, it is an internal war of massive proportions. Your loved ones try to empathize and offer support and help to fight the daily skirmishes. The war though, the one that will inevitably be lost, which is really not a defeat but a matter-of-fact in life, is a solitary one. Death. Mom fought with all her might. People admired her strength, her guts, her spirit, and her grace. And indeed, my mom was strong, gutsy, spirited, and graceful. My mother was also a fairly private person who had a very public illness. An illness which everyone- EVERYONE- is touched by and despises.

Here’s where my thoughts, sadness, and disgust come into play. Woe is not I. Woe is WE. We fail in so many ways.

My father as you all know battles another dreaded disease- Alzheimer’s. He’s in the late stages now. He, unlike my mother, was a very public person, yet he has been saddled with a very closeted disease. It is we as a society comprised of supposedly loving families and friends who fail. It’s not that people don’t care. It’s not that awareness isn’t growing. I think it’s this simple and this heart- wrenching. The man that people knew is closeted. While he is locked away in his own mind, it is the key that everyone throws away that makes me sick to my stomach. He can no longer walk the streets. He can no longer go to the coffee shop and shoot the breeze with his buddies or those about town. He can no longer enjoy a meal in his family’s presence. Whereas my mother had the choice as to whether or not she would continue to do those things, my father does not. And therein is where my sadness and disgust emerge.

Alzheimer’s does steal from the person who is afflicted, but my sadness isn’t for my father or for myself. I am saddened by and for the many who don’t see him, or their own friends and loved ones with the illness. Dad is not dead. “Life is for the living” I hear time and again. Guess what? The smiling man who looks fabulous in yellow is very much alive. His pleasures are few, but if you could see how he still enjoys a jelly donut, holding a hand, or someone who smiles at him in passing, you’d know he’s very much here. He’s not the same man at a glance, but he’s the same man. And for the record, I am not a wonderful daughter. I’m just a daughter, a human being, who is doing the best she can. I’m the girl who still sees the light and laughter in the man who taught her to step outside of herself and give back to the community and world at large.

So, during this ensuing week of remembrance, post Memorial Day, remember that the sorrow you feel and condolences you offer to the caregiver while appreciated are not warranted and do not make the caregiver necessarily feel better. I am caring for someone who is still alive. Very much alive. It is a slow process of dying, but the end is not here. In my mind and in the eyes of a power greater than any of us, my father and others who live with this disease are still human, still feel, and still contribute. They are teaching us to value life. I and others who have Alzheimer’s in their faces each day would much rather you see, really see, that our person- our father, husband, brother, uncle, and friend is still there. Is still here. Send a card. Make a visit. It may be hard for you, but trust me, the small battle of getting through the day would be so much easier for the Alzheimer’s patient if he or she was not totally forgotten and closeted. Being locked in his or her own mind is bad enough. And I guarantee that if what you are looking for is a moment to stop and appreciate what you have and to get outside of yourself, Alzheimer’s is the wake-up call.

Remember. Remember. Right now you have that extreme luxury.

Wishing all of us peace, joy, and the power of remembering what it means to live and love fully and with intention and purpose.

So many things come to light when Sylvia sits out in the sunshine on the cove.

Sylvia’s Basket

Hopes. Dreams. Wishes. Love. Joy. Trust. Respect. And so much more. You must keep filling your basket which of course requires energy.

Erma constantly reminds Sylvia to take good care of herself first- something Erma learned the hard way but she eventually learned!

The gals’ suggestion for today and definitely for the weekend: Do something just for you!

Today Erma’s Delivering

Ever have a time when you can’t shake a word, a melody, or feeling? You just cannot get whatever it is out of your mind? It happens to Erma more often than she’d like and usually when she should be concentrating on something or someone else. The word that has been stuck in her craw both last night and as she starts this new day is “delivery” (happy to say that it’s no longer gnawing at her since she decided to share her annoyance with Sylvia for a change) — yes, delivery. Indeed.

Of course, dealing with the impediment of having this word caught in my mind’s eye has been more than a tad annoying, but like the storms we’ve weathered recently, its presence no longer hinders and the reason for its resonance has become clear. Just as the storm arrives fiercely and then leaves quietly so that we may know what calm truly means, the word delivery keeps coming to the forefront of my mind so that I can find direction and purpose. The reminder succinctly: I need to deliver.

Delivery to most people means the act of dropping off something or making a deposit. It suggests a completed action. For me, it encompasses so much more. It means starting something, creating, producing, and feeling. Life is all about the delivery! How one delivers an idea, a gift, a speech, and even a baby reveals intention.

I’ve been thinking, writing, and editing a great deal (to some extent ad nauseum which is both necessary and painfully characteristic of most writers at various times), and doing all three because I firmly believe in the power of delivery. Delivery demonstrates intention– one can deliver with sincerity, with humor, with love, with hope, and with gratitude. On the flip side, one can also deliver with fear, with sarcasm, with disdain, with disgust, and with flagrant disregard. The difference is intention. And people -our connections, our friendships, and our daily audience- create intention. I’ll share with you that my audience motivates me and creates intent and purpose, both surprisingly and knowingly. I’m responsible for the delivery, but each of you reminds me that simply being and doing will get me through the day but will not necessarily make the most of my day. Each of you -my family; my friends (my Sylvias and Ermas) near and far; my father; and often my son (that young man especially inspires me)- every single one of you makes me think more deliberately about how I live and deliver both me and my message to the world.

What’s the message today?

On this Friday, Good Friday for many and at sundown tonight the beginning of Passover for others, I’m finally able to get past this sticking point and carry myself from pause to purpose. Hoping that your weekend delivers you from any troubles that may be weighing on you and brings you to a place of peace and purpose– wherever you need to be at the moment.

Mark this one delivered with love from Erma.